Baby with Thalassemia Need People Help

Thalassemia Symptoms

Nia Ramadiyanti, baby with thalassemia disease require people help for the cost of bone marrow transplant surgery in Singapore or Malaysia.

Nia Ramadiyanti is the daughter of a man named Syukur, a resident of Karimun Regency, Riau Islands Province, Indonesia. Currently, Nia treated at Karimun Regional General Hospital and undergo regular blood transfusions every month.

The medical team stated Nia had to undergo bone marrow transplant surgery abroad, because in Indonesia not yet have a medical facility for bone marrow transplantation.

Previously, Nia aged 1 year 10 months were treated at Cipto Mangunkusumo Hospital, Jakarta, but the hospital's medical team also suggested that Nia surgery abroad.

"Bone marrow transplantation is one way to cure the disease thalassemia. And it can only be done abroad, such as Singapore or Malaysia,''said Dr. Ibnu Arif, medical teams Karimun Regional General Hospital.

Gratitude, Nia's father admitted to not having it cost to bring the child underwent bone marrow transplant surgery abroad.

''As a worker, I can not afford to bring Nia surgery abroad,'' he said.

According to him, his daughter's medical expenses, long treated at Karimun Regional General Hospital, and in Jakarta covered through public health insurance program by Karimun regency government.

''I hope there are philanthropists who are willing to help my child operating costs,''he said.

Thalassemia is a hereditary disease. Symptoms include facial pallor, enlarged abdomen due to swelling of the spleen and liver. If not treated will change the face of bone shape and color of the skin becomes blackened.

This disease arises due to lack one of the substances forming hemoglobin (Hb) or red blood cells so that the production of hemoglobin is reduced.

Hemoglobin is a substance inside red blood cells that function to transport oxygen from the lungs throughout the body, other than that which gives the red color of red blood cells.

Until now there is no medicine that cures the disease thalassemia in total. The most optimal treatment is a lifelong blood transfusions and maintaining Hb levels are always equal or 12 g/dl and overcome the side effect of blood transfusion.

However, bone marrow transplants, according to medical is one way of overcoming the disease thalassemia. Bone marrow is a tool to produce proteins necessary for the formation of red blood cells or hemoglobin.

Posted in: Health News